EVENTS AND FUNDRAISERS

EVENTS

17 July 2021 - Bristol Channel Swim

Neil is planning to swim the challenging waters of Bristol Channel from Swansea to Ilfracombe in order to raise funds for PANS PANDAS UK.  The swim will be piloted by Swansea Watersports and is planned to take place on 17th July, but this may change depending on conditions.

Neil comments:

"This challenge genuinely scares me - the tides are fierce in the Bristol Channel and the conditions can change so quickly. The charity is very close to my heart - my son Jack has PANDAS. 2 years ago we had not heard of the condition Jack had anxiety, involuntary movements, OCD, he was refusing to eat and was harming himself - he couldn't leave the house. Luckily a brave family who had a child who was suffering like Jack shared their story on This Morning and we saw it. The symptoms they were describing were identical to those that Jack had - after years of suffering for our family it was an amazing moment! We were able to get Jack the help he so badly needed. Jack is now doing amazingly, he is currently symptom free and is thriving at school."

Neil and his wife Lucie also recently told their story on Channel 4's 'Steph's Packed Lunch'

 Please support Neil in this, his second incredible challenge for PANS PANDAS UK by clicking here to donate:  BRISTOL CHANNEL SWIM  If you are a UK tax payer, then please tick the box for Gift Aid too, as this will increase the donation by an additional 50% (with the match funding) so please do give what you can.

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24th July 2021 - Dunwich Dynamo Cycle Challenge

 

The Dunwich Dynamo Cycle Challenge is a 120 mile-ish overnight cycle ride from Hackney, London to Dunwich Beach on the Suffolk Coast in time for the Sunrise.

 

This will be a totally unsupported ride, no mechanics, no feed stations, no support vehicles, literally just Matt and his bike.  Anything could happen under the full moon.

 

Matt and his wife Lisa have a lovely son called Christopher who has been affected by PANS and you can read his story here.

 

Matt’s employer has very generously agreed to match 100% of ALL donations raised, so it really doesn’t matter how much or how little you can afford to give, every penny you give is worth double to PANS PANDAS UK.  If you are a UK tax payer, then please tick the box for Gift Aid too, as this will increase the donation by an additional 50% (with the match funding) so please do give what you can. 

Please support Matt in his incredible challenge by clicking here to donate:  DUNWICH DYNAMO

 

21st August 2021 - 3 Peaks, 24 hour Challenge

Matt will be climbing the 3 highest peaks in Scotland, England and Wales all within 24 hours.  In short, Matt will undertake 23 miles of hiking with an overall ascent of more than 10,000 feet!

Matt and his wife Lisa have a lovely son called Christopher who has been affected by PANS and you can read his story here.

Matt’s employer has very generously agreed to match 100% of ALL donations raised, so it really doesn’t matter how much or how little you can afford to give, every penny you give is worth double to PANS PANDAS UK.  If you are a UK tax payer, then please tick the box for Gift Aid too, as this will increase the donation by an additional 50% (with the match funding) so please do give what you can. 

Please support Matt in his incredible challenge by clicking here to donate:  3 PEAKS

 

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5th September 2021- Leah Midgley runs the Leeds UK Half Marathon

Leah Midgley would not have classed herself as a runner a year ago, but one day in January 2020 she put on her trainers and went for a run.  Barely able to run for 90 seconds without wanting to stop she never thought that almost 18 months after putting on her trainers for that first time she would add “runner” to my list of qualifications.  Leah is training to run the Leeds UK Half Marathon in September 2021 in aid of PANS PANDAS UK.

Leah says "Six years ago my youngest brother was diagnosed with PANDAS which is a neuropsychiatric condition triggered by a misdirected immune response to a Strep infection. This syndrome is mostly diagnosed in pre teens and has a number of symptoms. However, my brother was an anomaly as he was 16 when diagnosed. He went from a fun loving young man with so much academic promise to a completely different child overnight. My parents and his close friends saw frightening changes in him.  Sleep deprivation, memory loss, aggression, panic attacks, OCD, anxiety issues, suicidal thoughts, drug use, tics, verbal outbursts, regression in coping skills and he was unable to continue normal friendships. Months of doctor visits, blood work and tests, the professionals arrived at the diagnosis of PANDAS." 

Feel free to follow me on my little running Insta blog on Instagram so you can see how my training is going. You can find me @mysneakersandme83.

Please support Leah by clicking here to donate LEEDS UK HALF MARATHON If you are a UK tax payer, then please tick the box for Gift Aid too, as this will increase the donation by an additional 50% (with the match funding) so please do give what you can.

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