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INTERNATIONAL GUIDELINES

As of January 2023, two sets of international, peer-reviewed treatment guidelines for PANS and PANDAS have been published. These are Clinical Management of Pediatric Acute-Onset Neuropsychiatric Syndrome (Parts I, II, and III, 2017) and Clinical guidance for diagnosis and management of suspected Pediatric Acute-onset Neuropsychiatric Syndrome in the Nordic countries (2021).

JCAP - Clinical Management of PANS:

Thienemann, M., Murphy, T., Leckman, J., Shaw, R., Williams, K., Kapphahn, C., Frankovich, J., Geller, D., Bernstein, G., Chang, K., Elia, J., Swedo, S. (2017) Journal of Child and Adolescent Psychopharmacology. V27(7) pp1-8

Cooperstock, M., Swedo, S., Pasternack, M., Murphy, T.; for the PANS PANDAS Consortium (2017) Clinical Management of Pediatric Acute-Onset Neuropsychiatric Syndrome: Journal of Child and Adolescent Psychopharmacology. V27(7) pp1-13

Nordic Guidelines:


Pfeiffer, H., Wickstrom, R., Skov, L., Sørensen, C., Sandvig, I., Gjone, I., Ygberg, S., de Visscher, C., Nordstrom, S., Herner, L., Hesselmark, E., Hedderly, T., Lim, M., Debes, N., Acta Paediatrica. 2021;110:3153–3160.

The PANS PANDAS Working Group does not recommend any particular guidelines.  However, in the absence of NICE guidelines, if patients want to share the existing international peer-reviewed guidelines with their doctors for them to use at their discretion, they may do so, however there is no current requirement for doctors to follow them.

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