Updated: Aug 5
We are delighted to have been part of such an important research priority setting workshop today. This event, organised by the James Lind Alliance and the British Paediatric Neurological Association, sought to identify the most important unanswered questions for research in childhood neurological conditions.
Bringing in the voice of the patients, carers and clinicians is key in ensuring the most important questions are answered in this research area and we thrilled to have been there to represent the PANS community in the UK.
We cannot say much about the outcomes of the workshop just yet but look forward to updating you all once the steering group has completed the next stage of the process.