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Joining up with Neurological Alliance

Updated: Nov 4, 2022

As part of Neurological Alliance, PANS PANDAS UK, are pleased to join other leading charities in writing to Jeremy Hunt, Chancellor of the Exchequer, about the cost of living crisis and the potential impact on those living with neurological conditions.


Neurological Alliance members have all expressed grave concern about how the increase in energy bills and cost of living can affect their members.

The letter to the Chancellor proposes three actions that will make a difference:


1. Uprate benefits in-line with inflation

2. Increase the levels of Disability Cost of Living Payments

3. Extend the Warm Homes Discount to disabled people


Georgina Carr of the Neurological Alliance said,

“Not only is it a struggle to access the right support, but living with the effects of a neurological condition often comes with a hefty price tag. A safe and comfortable home, the right specialist care and the right aids and adaptations, are all vitally important to staying in work as long as possible, socialising and retaining independence. That is why support to manage these extra costs is so important, but right now, the Government has not committed to meeting those costs."










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