In recent months, PANS PANDAS UK, alongside a number of other charitable organisations representing people with different neurological conditions, have been invited to feed into the forthcoming Major Conditions Strategy. Hosted by the Neurological Alliance, these meetings have been called in order to ensure that this new NHS strategy reflects the experiences and needs of our communities.
We were pleased to have the opportunity to discuss some of the challenges experienced by those living with PANS and PANDAS, and to make some suggestions about the ways in which the new strategy could better serve people living with neurological conditions. Our thanks go to one of our incredible young community members who attended the consultation for children and young people and spoke eloquently and with maturity about what needs to change in the future.
We look forward to seeing how the Major Conditions Strategy progresses and are grateful to both the Neurological Alliance and the Department for Health and Social Care for including us in this process.