A letter written by a group of our incredible Youth Board members was hand-delivered to Maria Caulfield earlier this week.
Robin Millar, MP met with the Parliamentary Under Secretary of State at the Department of Health and Social Care and Chair of the new SEND reform board to discuss PANS and PANDAS with her, and to ask for her support in improving the care and support available to our community.
We took the opportunity to share a letter with Maria, in which our Youth Board members expressed how living with PANS and PANDAS has impacted on their time in education and asking her to keep children with the conditions in her mind as she helps to roll out the new SEND reforms.
We are so grateful to Maria Caulfield and Robin Millar for taking the time to discuss how to improve things for all families living with PANS and PANDAS. Equally important, huge thanks to all of our Youth Board members who are so generous with their time and dedication to making positive change happen for others like them.
If you, or someone you know between the ages of 8 and 21, would like to apply to join our Youth Board, please click here for more information.