PANS PHYSICIAN'S NETWORK TREATMENT GUIDELINES
These guidelines were first published in May 2018 following several meetings between the PANS Physicians' Network UK (PPNUK) and the Charity PANS PANDAS UK. Based on the US treatment guidelines originally written by the US PANDAS Physicians' Network, these guidelines have been modified to adapt to UK medical practices with input from the following NHS Foundation Trusts:
University Hospital Southampton
Kings College Hospital
South London and Maudsley
Birmingham Children's Hospital
Alder Hey Children's Hospital
County Durham and Darlington
There was also collaboration from doctors in the Republic of Ireland.
GP's are strongly encouraged to start treatment and investigations early as early treatment is likely to improve the long term outcome of these patients.
Please note: These guidelines are under review and are not currently available to the general public but medical professionals can access them by contacting the charity here.
RESEARCH DOCUMENTS AND JOURNAL ARTICLES
JCAP - Clinical Management of PANS:
JCAP - Overview of Treatment of Pediatric Acute-Onset Neuropsychiatric Syndrome - click to view
IJPO - Improvement of Psychiatric Symptoms in youth following resolution of Sinusitis - click to view
Novaturient Productions have kindly made Stolen Childhood publicly available at no cost and we are delighted to share it here.
OTHER USEFUL SITES
Click on the logos below to visit the sites.
Click on the thumbnails below to read more and purchase the book.
Daily Mail (online) - Toddler was possessed after tonsilitis triggered a strange condition that left him with OCD, a nervous tic, 'burning skin' and no nails, 1 Apr 2019 click to view
Devon News - Dad warns of rare illness PANS/PANDAS that saw his happy son become aggressive, anxious and lose fingernails, 24 Mar 2019 click to view
BBC News - Mothers appeal after boy diagnosed with autism when e just needed antibiotics, 25 Jan 2019 click to view
The Times - Doctors miss child illness that alters personality, 24 Sept 2018 click to view
ITV News - More awareness needed on children's neurological conditions, 21 Sept 2018 click to view
i news - These children were told they have autism and mental health problems but the cause was a bug - and 'thousands' like them are being misdiagnosed, 21 Sept 2018 click to view
Rare Revolution Magazine Charity Spotlight - PANS PANDAS UK - The newbies on the block breaking down professional misconceptions, Summer 2018 click to view
The Northern Echo - Esmae-Rose Bailey and PANDAS 2017 click to view
Discover Magazine - Hidden Invaders 2017 click to view
The Independent - Strep throat can cause behavioural disorders 2017 click to view
The Neuropsychotherapist - Understanding PANS and PANDAS 2017 click to view
"Christopher’s story started in January 2019 after having an undiagnosed
strep infection. After various trips to the doctors over the coming weeks,
we kept being told it was a viral infection..." read more
"Five years ago both our sons were diagnosed with PANDAS/PANS. Although neither are flare free, both are in recovery mode, managed really well by our doctors, family and school. When I try to explain what it is like to live with PANDAS..." read more
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