RESOURCES

PANS PHYSICIAN'S NETWORK TREATMENT GUIDELINES

These guidelines were first published in May 2018 following several meetings between the PANS Physicians' Network UK (PPNUK) and the Charity PANS PANDAS UK.  Based on the US treatment guidelines originally written by the US PANDAS Physicians' Network, these guidelines have been modified to adapt to UK medical practices with input from the following NHS Foundation Trusts:

 

  • University Hospital Southampton

  • Kings College Hospital

  • South London and Maudsley

  • Birmingham Children's Hospital

  • Alder Hey Children's Hospital

  • County Durham and Darlington

  • There was also collaboration from doctors in the Republic of Ireland.

GP's are strongly encouraged to start treatment and investigations early as early treatment is likely to improve the long term outcome of these patients.

Please note:   These guidelines are under review and are not currently available to the general public but medical professionals can access them by contacting the charity here.  

RESEARCH DOCUMENTS AND JOURNAL ARTICLES

  • JCAP - Clinical Management of PANS:

  • JCAP - Overview of Treatment of Pediatric Acute-Onset Neuropsychiatric Syndrome - click to view

  • IJPO - Improvement of Psychiatric Symptoms in youth following resolution of Sinusitis - click to view

STOLEN CHILDHOOD

 

Novaturient Productions have kindly made Stolen Childhood publicly available at no cost and we are delighted to share it here.

 

 

 

OTHER USEFUL SITES

Click on the logos below to visit the sites. 

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BOOKS

Click on the thumbnails below to read more and purchase the book.

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PANS PANDAS for Children, Family and Edu
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MEDIA

Daily Mail (online) - Toddler was possessed after tonsilitis triggered a strange condition that left him with OCD, a nervous tic, 'burning skin' and no nails, 1 Apr 2019 click to view

Devon News - Dad warns of rare illness PANS/PANDAS that saw his happy son become aggressive, anxious and lose fingernails, 24 Mar 2019 click to view

BBC News - Mothers appeal after boy diagnosed with autism when e just needed antibiotics, 25 Jan 2019 click to view

The Times - Doctors miss child illness that alters personality, 24 Sept 2018 click to view

ITV News - More awareness needed on children's neurological conditions, 21 Sept 2018 click to view 

i  news - These children were told they have autism and mental health problems but the cause was a bug - and 'thousands' like them are being misdiagnosed, 21 Sept 2018 click to view

Rare Revolution Magazine Charity Spotlight - PANS PANDAS UK - The newbies on the block breaking down professional misconceptions, Summer 2018 click to view

The Northern Echo - Esmae-Rose Bailey and PANDAS 2017 click to view

Discover Magazine - Hidden Invaders 2017 click to view

The Independent - Strep throat can cause behavioural disorders 2017 click to view

The Neuropsychotherapist - Understanding PANS and PANDAS 2017 click to view

PERSONAL STORIES

Christopher's story

"Christopher’s story started in January 2019 after having an undiagnosed

strep infection. After various trips to the doctors over the coming weeks,

we kept being told it was a viral infection..." read more

Tracey's story

"Five years ago both our sons were diagnosed with PANDAS/PANS. Although neither are flare free, both are in recovery mode, managed really well by our doctors, family and school. When I try to explain what it is like to live with PANDAS..."  read more

Share your story with us.  Click here to send us your story

HELP & DONATE

As a registered Charity, we can only continue our work with your kind donations, so please see our 'Events' page for more information on fundraising events which you may like to support.  Alternatively, you can visit our 'Get Involved' page for other ways to support us.

Together we can find more answers. Thank you so much for your ongoing support.  If you wish to donate please email us for details.

CONTACT US

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© 2020 PANS/PANDAS UK. Logo and site by JSC. 

Charity Number: 1178484